In the short 2 1/2 weeks of Adilene's life we have been to the doctor or hospital more than I would have liked. It all started the day after she was born. Friday, November 8th her Bili level was a little high and so she was put on photothearpy in the hospital. She was in the nursery unless she needed to eat and that was the only time I got to see her. Saturday the 9th we were able to come home. Tuesday the 12th we went to the pediatrician for the first time, I knew it was coming and so I wasn't that surprised that we needed to check her Bili level again. The shock of that appointment was she developed a murmur and we needed to go see a cardiologist the next day. Her Bili was high also and so she needed to be put on a Bili blanket at home.
the 13th at the cardiologist she got and EKG and and Echo done. They
found 3 holes in her heart, but all are small enough that we are just
going to wait and see if they will close on their own. We will go back
in a few months to check them again. While were were there we learned
that her Bili level that we had checked that morning was getting higher
and so she needed to be admitted into the Children's hospital. This was
another shock, I was more worried about Blaiden at this point than
Adilene because I knew this would solve her problem. I just had a hard
time being away from Blaiden so much.
in the hospital Adilene had to be poked a ton. This was the hardest
part because she was not bleeding very well and so getting any blood
from her was a big deal. We had to put off a blood test that she needed
because there was just no way that they could get the amount of blood
they needed (and it was only about 3ml).
15th we went back to the pediatrician to check in and make sure she was
still getting better and didn't need to go back to the hospital, she
looked great! We also went back on the 22nd to check her weight gain.
She weighed in at 6lbs and is doing great.
plan is to head up to Children's Hospital to get the blood test done
that we couldn't on the 13th. It shouldn't be bad as long as Adilene is
cooperating, she will bleed more, and they can find a vein easily.
of this seems like a lot but really it hasn't been that bad. The first
week was a little stressful but Fred could take off work, we had
friends that helped with Blaiden, and my mom came to help too. I knew
that there would be health concerns when we found out she had Down
Syndrome and my only hope was that we didn't need to go into surgery
right away. I just didn't know if Adilene or myself could handle that.
We are in the clear so far and I don't see any reason why that would be
changing. All of the issues that Adilene has had are all fairly common
and although they happened to her with Down Syndrome they could just as
easily be found in a child without Down Syndrome. Overall she is doing
wonderful and her diagnosis has not affected her at all.